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[personal profile] serene


Met with the endocrinologist yesterday, who besides the fact that she's about twelve years old and terminally patronizing, appears to be on the ball and to care about my thoughts about my own treatment.

(Minor glitch, possibly nothing: She highly recommended Dr. G. as the surgeon, and then today, the Head and Neck Surgery Department called and gave me an appointment for tomorrow at 4:00. Just now, I looked and saw that it's with Dr. H., a whole different surgeon. I wrote to the endocrinologist and asked her opinion on the second guy. I mean, she was so complimentary about Dr. G. that I hate to switch if it's a bad idea.)

Anyway, I have an appointment at 4 tomorrow, and will probably get a surgery date then. The plan is to take out the rest of my thyroid and a conservative number of lymph nodes (rather than going crazy in there), then biopsy the tumor and lymph nodes and decide then whether or not the radioactive-iodine treatment is advised/necessary. [Edit: if it is, it would be a couple months later, after I've healed from surgery and gone without my thyroid pills for a while.] I was happy when the endocrinologist said that if there's no cancer, she wouldn't recommend it, but if there's any at all, she's planning to strongly encourage it. That feels like a boundary I can get behind.

More when I know it.

Date: 2009-01-09 04:36 am (UTC)
From: [identity profile] clever-doberman.livejournal.com
other than the G/H conundrum, it does sound like a good two step plan. and I assume they will let you sleep through the surgery, unlike the biopsy. it's still fucking cancer, but it will be very nice when the fucking cancer is outside of your body.

Date: 2009-01-09 04:38 am (UTC)
From: [identity profile] serenejournal.livejournal.com
Heh. Yep!

Last time, I was out for a few hours and stayed overnight. Not sure how Kaiser handles it, but I'll ask tomorrow.

Date: 2009-01-09 04:56 am (UTC)
From: [identity profile] wild-irises.livejournal.com
Fuck cancer. Fuck cancer. Fuck cancer. (Other bad news today, not unexpected but early, about someone you don't know.)

Go Serene!

Date: 2009-01-09 04:59 am (UTC)
From: [identity profile] serenejournal.livejournal.com
Damn right. FUCK cancer sideways.

Our Family Kaiser

Date: 2009-01-09 05:07 am (UTC)
From: [identity profile] loracs.livejournal.com
dbubley will be more than happy to vacate a bed for you. ;-)

It sounds like a good conservative plan. Do I really need to say this "anything, anything at all that you need, ask, okay?"
*hugs*

Date: 2009-01-09 05:09 am (UTC)
From: [identity profile] loracs.livejournal.com
Double FUCK, dbubley just called to say her cousin died about an hour ago from brain cancer.

Date: 2009-01-09 05:09 am (UTC)
From: [identity profile] clever-doberman.livejournal.com
what she said

Date: 2009-01-09 05:10 am (UTC)
From: [identity profile] clever-doberman.livejournal.com
was this expected or sudden? a close cousin?

Re: Our Family Kaiser

Date: 2009-01-09 05:14 am (UTC)
From: [identity profile] serenejournal.livejournal.com
Thank you, sweetness. *mwah*

Date: 2009-01-09 05:15 am (UTC)
From: [identity profile] serenejournal.livejournal.com
Pfff. That's rough. Give [livejournal.com profile] dbubley my love when you see her, please. Also, can she have chicken soup? :-)

Date: 2009-01-09 05:19 am (UTC)
From: [identity profile] loracs.livejournal.com
It was her first cousin. She had lung cancer a few years ago and it went away, then she got the brain cancer. About four days ago, she slipped into a coma. dbubley is very sad.

Date: 2009-01-09 05:22 am (UTC)
From: [identity profile] loracs.livejournal.com
Just got off the phone with her and she said to tell you she's thinking of you. Not sure about the soup, she has been eating, but depending on what find, they may put her on "nothing by mouth" status.

Date: 2009-01-09 05:22 am (UTC)
From: [identity profile] clever-doberman.livejournal.com
well, that sucks. I hope she didn't suffer, and I wish Bubley could have seen her recently. hugs to her for sure.

Date: 2009-01-09 05:50 am (UTC)
From: [identity profile] jmkelly.livejournal.com
I completely identify with the "twelve years old" remark -- practically every specialist we saw last year for my wife's breast cancer seemed fresh from the Senior Prom.

I suspect the endocrinologist's praise of Dr. G. was a kind of pep talk, to be repeated with only slight variations for Dr. H. Patients who are told their surgeons are top of the line probably do better than those who hear something like "You'll have Dr. G., but don't worry, this is so simple not even that old drunk could screw it up."

My limited secondhand experience with Kaiser's surgeons has been quite good. Also, judging from my wife's experience, cancer treatment is mostly a matter of protocols and probabilities. For a given set of signs and symptoms protocol dictates certain therapies which appear to have worked well in most similar cases, and for a big outfit like Kaiser that's pretty much the whole story, so to some extent it doesn't matter who the surgeon is as long as s/he's reasonably competent -- the protocol will dictate what's to be done and the surgeon's main concern will be to do it neatly.

Regarding general versus local anesthesia -- my opinion's not worth much, but my wife felt afterwards that she would have done better (been less nauseated afterwards) with local. She chose general, which the surgeon had recommended because no one knew for certain how much would have to be cut out; if it turned out to be more than anticipated, using local anesthetic would involve annoying and possibly painful delay. As it turned out, a local probably would have been better, but there was no way to know that in advance. YMMV; just don't sweat the decision too much; there are advantages and disadvantages either way. My wife felt like hell for about twelve hours afterward, but then -- in the blink of an eye -- felt fine again.

Good luck!

Date: 2009-01-09 05:57 am (UTC)
From: [identity profile] serenejournal.livejournal.com
I do well under general anaesthesia, so I think I'll go for it. Thank you so much for your insights; I really appreciate the input.

Date: 2009-01-09 06:26 am (UTC)
From: [identity profile] futabachan.livejournal.com
Seriously bloody fuck cancer. It had better stop messing with people I love, or I'll have to beat it up. Grr.

Date: 2009-01-09 06:41 am (UTC)
From: [identity profile] serenejournal.livejournal.com
Love you, too. :-)

Date: 2009-01-09 06:45 am (UTC)
firecat: red panda, winking (Default)
From: [personal profile] firecat
I am glad that there is progress on getting this over with.

Date: 2009-01-09 06:53 am (UTC)
From: [identity profile] kightp.livejournal.com
Fuck cancer sideways, and the hell out of your life.

Date: 2009-01-09 07:07 am (UTC)
From: [identity profile] eeyore-grrl.livejournal.com
good luck on the healthy thing. cancer be NIL!

*hug*

Date: 2009-01-09 07:34 am (UTC)
From: [identity profile] klwalton.livejournal.com
Not just a GIP.

Date: 2009-01-09 07:36 am (UTC)
From: [identity profile] serenejournal.livejournal.com
Lurrrrve it. :-)

Date: 2009-01-09 09:36 am (UTC)
ailbhe: (Default)
From: [personal profile] ailbhe
Out, damn spot.

Date: 2009-01-09 12:24 pm (UTC)
ext_6381: (Default)
From: [identity profile] aquaeri.livejournal.com
You're in capable hands and have the right attitude, so I'll just be in your cheersquad over here.

Date: 2009-01-09 12:35 pm (UTC)
nitoda: sparkly running deer, one of which has exploded into stars (Default)
From: [personal profile] nitoda
Best of luck with it.

Date: 2009-01-09 12:46 pm (UTC)
redbird: closeup of me drinking tea, in a friend's kitchen (Default)
From: [personal profile] redbird
Best of luck, and it sounds as though the endocrinologist is okay on most of the substantive stuff, though annoying.

Date: 2009-01-09 01:48 pm (UTC)
From: [identity profile] janetmiles.livejournal.com
Fuck cancer, and good luck.

Date: 2009-01-09 06:36 pm (UTC)
From: [identity profile] aquenigmatic.livejournal.com
Thinking of you and yours, hon.

Date: 2009-01-09 10:08 pm (UTC)
From: [identity profile] hnybny.livejournal.com
I'm sending my best for both your health and dealing with docs!

Date: 2009-01-09 10:27 pm (UTC)
From: [identity profile] ptigris.livejournal.com
I remember encountering a patronizing Nurse who was also about 12. The funny thing was I asked her a question, and to hide the fact that she didn't know the answer, she answered it with something like "Well isn't it obvious?" and all huffy and irritated that I asked a question.

I almost laughed, but decided that it might make her cry - she was so clearly hiding behind a false mask of bravado and didn't want to admit she didn't know.

I asked the doctor when she wasn't in the room later.

Aren't people interesting?

Anyways, best wishes for the surgery. *hugs*

Date: 2009-01-09 11:31 pm (UTC)
From: [identity profile] waywardcats.livejournal.com
*Hugs*

Please let me know if I can do anything to help.

Date: 2009-01-10 06:58 am (UTC)
From: [identity profile] hopeforyou.livejournal.com
Damn. I hope that this surgery takes care of everything and that you heal fast.

I'd add "Fuck Cancer" there too, except I hope you have a lot of awesome loving fucking and it has nothing to do with cancer.

Fuckity

Date: 2009-01-10 05:26 pm (UTC)
From: [identity profile] joedecker.livejournal.com
Fuck, fuck, Fuck Cancer.

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